Patient-based Registry

Leon & Friends e. V.

Leon and Friends e.V. was founded in 2018 in Austria. It is a non-profit organization, with the mission to improve the life of individuals affected by SYNGAP1-related disorders by fostering research projects. Since its foundation, the Austrian organization has been at the forefront of SYNGAP1 research in Europe. LaF have already provided several seed grants for pre-clinical research projects. This was a crucial contribution to the work of the EURAS project, which will enable the continuation of the research started by Leon and friends e.V.