Patient-based Registry

Events & News

1st trimester 2024: a lookback

1st trimester 2024: a lookback

As we enter a new trimester, we would like to take a brief look back at some of the activities of the EURAS consortium in the last three months.

17 January – EURAS Consortium MeetingConsortium-meeting

Our semi-an...

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EURAS at the German National Congress for Rare Diseases (NAKSE)

EURAS at the German National Congress for Rare Diseases (NAKSE)

We are pleased to announce the recent participation of our partner Syngap Elternhilfe e. V. in the German National Congress for Rare Diseases (NAKSE) organized by ACHSE (Alliance for chronic and rar...

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EURAS at the 2nd SYNGAP1 Scientific Congress

EURAS at the 2nd SYNGAP1 Scientific Congress

The Vice President of the German Syngap Elternhilfe e. V., Marcos Mengual Hinojosa, had the privilege to participate in the 2nd Hispanic Scientific Online Congress for Syngap1 organized by the Syngap...

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EURAS Patient Board Inaugural Meeting

EURAS Patient Board Inaugural Meeting

Patient involvement is crucial for the EURAS consortium and the EURAS project, which was initiated by Syngap Elternhilfe e. V. It enriches the researchers' work and ensures that patients' needs are me...

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New Project “EURAS”

New Project “EURAS”

Advancing Treatments for Rare Neurodevelopmental RASopathies: Parents' Initiative for Affected Children Leads to New EU Research Project EURAS

The EURAS consortium brings together patients and resea...

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EURAS Kick-off Meeting

EURAS Kick-off Meeting

EURAS Kick-off Meeting, 18 – 20 July 2023, Erlangen, Germany

From 18 – 20 July, EURAS held a very successful kick-off meeting in Erlangen, Germany. For the first time, EURAS partners met face-to-fac...

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