News
EURAS at the German National Congress for Rare Diseases (NAKSE)
We are pleased to announce the recent participation of our partner Syngap Elternhilfe e. V. in the German National Congress for Rare Diseases (NAKSE) organized by ACHSE (Alliance for chronic and rar...
Read moreEURAS at the 2nd SYNGAP1 Scientific Congress
The Vice President of the German Syngap Elternhilfe e. V., Marcos Mengual Hinojosa, had the privilege to participate in the 2nd Hispanic Scientific Online Congress for Syngap1 organized by the Syngap...
Read moreEURAS Patient Board Inaugural Meeting
Patient involvement is crucial for the EURAS consortium and the EURAS project, which was initiated by Syngap Elternhilfe e. V. It enriches the researchers' work and ensures that patients' needs are me...
Read moreNew Project “EURAS”
Advancing Treatments for Rare Neurodevelopmental RASopathies: Parents' Initiative for Affected Children Leads to New EU Research Project EURAS
The EURAS consortium brings together patients and resea...
Read moreEURAS Kick-off Meeting
EURAS Kick-off Meeting, 18 – 20 July 2023, Erlangen, Germany
From 18 – 20 July, EURAS held a very successful kick-off meeting in Erlangen, Germany. For the first time, EURAS partners met face-to-fac...
Read more