Asociación SYNGAP1 España
We are a group of families who have gone or are going through the challenges of living with a loved one with a severe condition called Syngap1, and we are here to share our experiences and support other families.
Our goal is to bring together families affected by SYNGAP1 condition in Spain.
- To give visibility to the condition, and to raise funds for the research to find possible treatments.
- Promote services and resources of all kinds to improve the quality of life of those affected by Syngap1.
- Organize recreational activities for those affected and facilitate family respite.
- Promote support and respite services for families.
- Provide information and training on this disorder to family members, caregivers and professionals who intervene directly with affected persons.
- Ensure the right to full social inclusion of affected patients.