Patient-based Registry

SYNGAP1 UK / SynGAP Research Fund UK

Syngap1 UK
Syngap1 UK was formed in 2019, we are a non-profit Community group. Our priority is to provide support to other families in the community, to collaborate with scientific researchers, and to host conferences to join together both families & professionals who share one common goal to explore Syngap1.

SynGAP Research Fund UK
Our purpose: For the public benefit, to relieve the disease and suffering of people diagnosed with SYNGAP1 encephalopathy in any part of the world, in particular but not exclusively, by making grants to support the research and development of treatments, therapies, and support systems.

Main contacts

Photo of Melanie Battye
Melanie Battye


Photo of Dawn Brown
Dawn Brown

SynGAP Research Fund UK