Patient-based Registry

Rare Diseases Run 2024

Throughout the week of Rare Disease Day, 34 members of the EURAS consortium laced up their shoes and ran for rare diseases. As part of the 3rd RARE DISEASES RUN, organized by Syngap Elternhilfe e. V. along with 21 other patient groups, members of the EURAS Running Team demonstrated their solidarity for those affected by rare diseases.