Patient-based Registry

Timeline

01/06/2023

Project start

Press release: Advancing Treatments for Rare Neurodevelopmental RASopathies: Parents' Initiative for Affected Children Leads to New EU Research Project EURAS

18/07/2023 - 20/07/2023

EURAS Kick-off Meeting

Read more about it here.

19/07/2023

Launch of EURAS Twitter & LinkedIn

Follow us on Twitter and LinkedIn

20/07/2023

Nomination of the EURAS Patient Board

22/08/2023

Inaugural Meeting of the EURAS Patient Board

30/09/2023

Launch of project website

15/06/2024

Noonan Association Annual Day (Lille)

01/07/2024 - 02/07/2024

EURAS Consortium Meeting

01/06/2027

End of project