Patient-based Registry

Snygap Elternhilfe e. V. meets ePaG ERN ITHACA

Verena Schmeder and Marcos Mengual Hinojosa from EURAS partner Syngap Elternhilfe e. V. met representatives of the ePAG (European Patient Advocacy Groups) ERN ITHACA (European Reference Network for Rare Malformation Syndromes, Intellectual and Other Neurodevelopmental Disorders) 29 on March 2024. The possibilities for Syngap Elternhilfe e. V. within the EURAS project to participate in ERN ITHACA projects were explored.